I had a lunch hour think about my doubts yesterday; the ones that plague me about the history of my struggle with this illness.

I should mention that this is not the first time I’ve had a good long think about my accepting my diagnosis. I should mention that the thoughts are uncomfortable and confusing. I should mention that I have a history of swinging back and forth with my conclusions, and with my approach to managing my symptoms. I usually end up assigning my conclusions to either “I don’t have bipolar disorder, I just have a low character”, or “blame everything on bipolar disorder”.
4103090566_5a35203875_o

As I sat in my car, eating my Quarter Pounder With Cheese, considering the either-or questions about my diagnosis, I felt an uncomfortable tension in my torso. It almost felt like fear, and I could practically hear my own subconscious warning me that I was coming dangerously close to a conclusion about myself that could lead to stopping my medication again. I remembered the horrible withdrawal symptoms I’ve experienced in the past when I’ve suddenly decided that I just have a low character. I remembered the frustration of malfunctioning reason and judgement, the utter inability to focus on anything for more than an hour or two at a time – and the reverse, the hyper-focus on a wonderful intention, and getting pretty far down the road toward accomplishing some goal, and then suddenly becoming totally unable to complete the project.

If I had done nothing more than listen to that internal voice I wouldn’t have given the questions in my mind much more thought, but I ignored it while I ate my lunch. I thought about that first Paxil pill I took back in 1996 and wondered, regretfully, if all of the problems I went through were 100% caused by the medications I used, off and on, throughout all the worst years. I wondered if I took that medication, went on and off the medication, because I needed an excuse for the destructive, self-indulgent decisions I was making right and left. I even wondered if the mental health professionals I consulted during those years led me in to a lake of fire. I wondered if the medications I’ve been taking all these years have permanently damaged my brain, rendering me unable to function without them.

In other words, I spent a lot of time thinking about personal responsibility, yesterday. The very phrase was like a light from a distant source, shining down on the ground somewhere in front of me. A light I wanted to follow.

And so I took a deep breath, and here’s what I decided to consider as I move through the next few days:

  1. I think a lot better, and feel a lot better, on the medications I’m taking right now
  2. There’s no need for me to think about my medications, right now
  3. Ruminating about a period in my life that was awful won’t help me move forward
  4. I don’t practice much personal responsibility in my life – but that doesn’t really have anything to do with my character

Funny, but once I’d reached this point in my thinking I felt better, not worse. Taking as much personal responsibility as I can for my decisions big and small is something that is within my control every moment of every day. Personal responsibility is the opposite of helpless, and taking personal responsibility for the choices I make about my life feels good.

Taking charge of the choices I make about my ability to live a full and happy life despite having bipolar disorder means, to me, right now, doing exactly what I’m doing with this blog. It means stepping out of the shadows of my past, my fears, and my assumptions. It means not accepting the isolation I’ve surrounded myself with for so long, or my unwillingness to expose myself to rejection or failure because I’m different.

It means thinking well of myself.

Popularity: 1%

 

I spent some time on research over the weekend (and on finding a way to display that research in this blog). What little information I focused on was astounding and is still on my mind. The possible discovery of a gene that would point to an entire subtype of bipolar disorder that might be treated with anti-inflammatory treatment. A radically decreased estimated lifespan. Double and even triple risk of heart disease, kidney failure, asthma (all of which can also be impacted by faulty immune system responses, including inflammation). Even evidence that poor test results for blood lipids could be a hallmark of bipolar disorder.

Personally, I have both asthma and horrid cholesterol levels, and heart disease and immune disorders run in my family.

I’m no scientist, so I’m trying not to come to my own conclusions about what I’ve read but a few questions do keep spinning through my mind:

  • What would it take for physicians of all kinds to collaborate and plan care for their patients? And I’m not just talking about prescriptions, here. I’m talking about agreeing on risk factors to monitor, and non-pharmacological therapies, and overall support and monitoring
  • Why does the psychiatric community continue to focus on what appears to be outdated information: that is, that mental illness is all in our heads, and that medication designed specifically to sedate, to alter mood and perception, are our only options for treatment?
  • Why do mental hospitals continue to focus on warehousing, group therapy, and “one size fits all” psychopharmacology for their patients?
  • Why does bipolar disorder not immediately set off warning bells — why do our doctors not immediately test for those diseases and illnesses research so clearly shows are associated with it?

These questions, unfortunately, play in to my general distrust of the medical community – something I am working on overcoming. They also, however, lead to my next topic; one that Barb touched on when she commented on my last post: my own responsibility to commonsense self-care. Do I exercise? Not right now. Do I make an effort to eat a healthy diet? Rarely. Do I try do maintain a healthy sleep schedule? Never.

It would be easy to blame science for my health issues, and it would be easy to blame bipolar disorder for my poor self care. These are excuses I have to admit that I use every day. I don’t quite smoking because I’m afraid of a manic episode (something that’s happened in the past). I eat cinnamon rolls all day because I need the pleasure they give me to get through my work day. Ditto fountain Diet Cokes. I don’t cook healthy meals because I’m too tired. I don’t clean house because I have important creative business to attend to, like this blog.

Blame and excuses, like shame and guilt, have little place in a healthy life. When I was in therapy we focused a lot on these cornerstones of immobility, and I actually made some progress away from them. Now, having been off the therapy wagon for a number of years, I find that I’ve built on those cornerstones and now have a pretty solid foundation of unhealthy habits on which to live my life.

I hope we continue to make strides in the case for the inextricable links between physical and mental illness, and I hope our doctors catch up soon. It is important, though, not to get sidetracked by the questions they present.

Which is why, this week, I have the following goals:

  1. Cut out the cinnamon rolls
  2. Go to bed an hour earlier every night
  3. Begin the search for a therapist
  4. Continue my research, and blog every day
  5. Read and comment on a different blog every day

Does anybody else struggle with a tangle of medical, mental, and self-care issues? I’d love to hear about it if you do.

Popularity: 1%

Tagged with:
 
Page 1 of 11