Started my period yesterday and am expecting to feel a lot better because of it.

My periods stopped being 28 days apart 3 or 4 cycles ago. Lately they’ve been 3 weeks apart, 2 weeks apart, 25 days apart, and very heavy. I suspect this is perimenopause because of my age (44), and I wonder how long until I stop having periods all together, and what impact that will have on my health.

I remember Mom going through it. It’s still strange to me that she’s beyond menopause, now. Periods were something that tied us together for so long. Menopause was hard on my mother. Maybe it’s a hard time — the 40s and 50s — for most women. I’ve read that menopause is a lot like puberty and I can see how that is true. My body is changing (has been for a long time, really) in ways I never anticipated. Weight, fat distribution… nix that, actually. It’s more the permanency of the changes. I am moving beyond regeneration. It isn’t that my body is no longer at my command, it’s more that it doesn’t respond the way it used to. All that is old news and has been going on for 10 years, even though I didn’t understand it back then. I always think of my weight when I think about this but the thing that is happening is happening in all areas of my life, as strong and inevitable as water rushing around me and pushing me forward.

I think of the last school portrait I had made. I as 17, and pregnant (barely on both accounts) with short brown hair. I didn’t know I was pregnant, I don’t think. In my portrait my chin is stuck out to show my determination to do something important with my life. I was disdainful of platitudes and cliches and other people’s failings and mistakes. And yet now, after nearly thirty years more of living, I am beginning to see that I was mistaken. I thought that by doing things my own way I was following a short cut to some kind of promised land. But there are no short cuts and there is no promised land. There is just terrain — the same terrain we all pass through. There is just living. We’re all walking down the very same road and maybe success is nothing more than an imaginary scene we conjure up to keep us occupied. Maybe we’re all mere mortals pretending to be gods.

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It’s Gnawed So Bad

I love my house. Love my husband, my marriage, my dogs and cats. I love my familiarity with this city, and the cache of living here. I love that we make enough money to get by. Love my parents and that my grandmother (whom I also love) is still alive at 90 years old. I love that I have long hair and that it is just as curly as it was when I was give years old.

I love that things are growing in our backyard and that the pool is clean, and I love the sound the water makes when the pool pump is turned on. We have blue dragon flies that flutter around at eye-level out here and I love their blue-ness and their extra-large, round, eyes.

The wonder of it all is that I could be so constantly surrounded by all that I love and yet be consumed, today, by the two things in my life I detest: my job, and my health. Consumed as in fixated, overwhelmed by anxiety, weak with worry and unhappiness.

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Have I Been A Failure?

Today, I went out to the obituary section of our local newspaper and read the post for my friend’s family. It was quite literally the saddest thing I have ever read. I won’t intrude further on their grief by recounting any of it, here. I mention it because it was the thing on my mind before I found myself, surprisingly, wondering if I am a failure.

I didn’t wonder about it for long, really. Just a passing thought, a lightbulb going off over my head as I realized the question had caught my interest and might be one I would like to revisit later. It was soon swallowed by the grief after the obituary, which obliterated my self-centerdness for a bit.

There’s nothing like the topic of death to get you thinking about your own life. Right now I have, to paraphrase the GP I saw last week, “lumpy boobs” (as if I didn’t already know that; It’s like walking around with sacks of water balloons and marbles attached to my chest).
fear of failure
I have a written order floating somewhere around this house for a diagnostic mammogram and sonogram. I’ve had it since the day before Thanksgiving, but I haven’t made the call. I don’t know why, really. I’m curious about what’s in there. Things clearly feel quite wrong, to be honest. Perhaps it’s guilt because I didn’t follow up with the breast surgeon my doctor ordered me to see a few years ago. Perhaps it’s a determination never to have to sit through a particular test they might want to run that involves pushing a needle directly in to my nipple (“I screamed,” my in-law Dixie, who had this test before they diagnosed her breast cancer last year, told me). More likely it’s simple fear. My lungs are shot and have gotten worse over the past couple of years. There’s that persistent pain in my left side, at the chest wall, and that other weird pain in my right ankle that’s gotten worse over the past few months. “Nothing more than benign fibrocystic breast changes, allergies, asthma, poor posture, and the inklings of some future arthritis problem” is what I tell myself. But I’m sure enough good and scared.

It’s not that I’m afraid of dying. I’m absolutely petrified of dying — but that experience, frankly, seems far too remote to really comprehend. What I’m afraid of is finding out I’m dying and then living the rest of my life struggling to survive. Extreme treatments. Mastectomy. Lung surgery. Chemo. Radiation. Etc. I’m afraid of finding out I’ve run out of time to live just in time to realize the only thing I have time left to do is to try to live.

{MOM, I KNOW YOU’RE READING THIS, AND YES, I’M CALLING THEM TOMORROW MORNING}

Which led me to the thought: if I find out I have cancer, and it’s spread all over the place because I didn’t take care of this a few years ago, will I feel that I’ve wasted my life? Will I feel like a failure?

Right this minute, sitting here, knowing not a thing about my future… am I a failure? What’s been most important to me to succeed at? Did I do it? Would my husband say I’ve succeeded at being a great wife to him (I don’t think so). Would my previous employers say I contributed much to the positions I held (they might, but with shifty eyes when they said so)?

Would my parents survive if I didn’t? Would the end of my life be anything more than the sizzling hiss of the last of something consumed by fire?

If I found out I have cancer would I suddenly feel a fire lit underneath me to survive at any cost? Would I quite smoking? Would I just spend the rest of my life apologizing? Would I try to write that book I never seem to write?

Because, you know, almost no matter what, in the last few hours of my life I would probably finally see the light, finally get the urge to do exactly what I actually needed to do all along… and it would be too late. I’d go out of this world thinking, “Well, that figures.”

Sigh. Such oppressive thoughts. Probably time to stop cutting back on my !@#$% medication, for one thing. Time to get my mammogram, for another.

Not to worry, though, if you’re out there wondering if I have cancer: I’m certain I do not. My emergencies are pretty much always in my head.

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Food For Thought

The author of Before You Take That Pill posts to his blog about common sense and pills:

Does America Have A Prescription Drug Problem?

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When In Doubt

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My grandmother, Neta, used to listen to me tell her about the latest catastrophe in my life, and then she would tap her temple with her index finger, shake her head, and say, “Think! Think! Think!”.


Alternatively, she might say, “Stoooopid.” I loved the way she did that. Her minimal response was loud with the notion that the catastrophe had happened simply because I needed more practice thinking. Her “Stoooopid” was far from insulting; instead, it was an opportunity to laugh about the ridiculous mistakes we all sometimes make in life.

My husband listens to me tell him about the latest hard day that I’ve had, and then he simply says, “Uh huh.” And that’s about it. If he worries about me, he doesn’t say so. Last night, I told him I’ve been having some doubts about whether or not I have a mental illness. I told him I’ve been wondering about the power of suggestion, and he seemed to understand what I meant even though I didn’t go in to any detail. He smiled and said, “Uh huh.”

“You know, you have this unique ability to listen to me, no matter what, and never take a side, never give advice. I mean that in a good way.” I said.

“I pick sides,” he responded. “I pick your side.”

What strikes me about both Neta and David is their confidence in me. I can’t imagine either of them ever denying me the right to my own thoughts, my own ideas. Why, oh why, do I have so little confidence in myself?


I am critically and curiously reevaluating the assumptions and facts I have at my disposal about me and mental illness. I’ve done this often, over the years, never willing to pick a specific side and stick with it. It’s all a gray area for me, the area these doubts occupy. Sometimes I lay them down for a very long time. Sometimes I pick them back up and examine them curiously, like a puzzle I keep coming back to.

  • I doubt that I have a mental illness at all.
  • I doubt that my behavior isn’t within my control.
  • I doubt that my experiences are as extreme as I make them out to be.
  • I doubt that the worst of my mental states did not occur because I was experimenting with alcohol and psycho-pharmacutical medications, and because I was dealing with the consequences of immature and self-indulgent decisions I knew better than to make when I made them.

Over the past several days, as I’ve read more and more posts on other blogs by authors who are struggling with psychosis and mania and truly crippling depression, I’ve begun to doubt my diagnosis. More than that, I’ve begun to doubt the way I cling to my diagnosis, and I’ve started wondering if I’m hiding behind it. How many times have I made the decision not to do something I need to do – from cleaning house, to getting my dental work done, to eating a half-way healthy diet, to exercising – and blamed it on being bipolar?

Am I taking pills instead of making good decisions?

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I had a lunch hour think about my doubts yesterday; the ones that plague me about the history of my struggle with this illness.

I should mention that this is not the first time I’ve had a good long think about my accepting my diagnosis. I should mention that the thoughts are uncomfortable and confusing. I should mention that I have a history of swinging back and forth with my conclusions, and with my approach to managing my symptoms. I usually end up assigning my conclusions to either “I don’t have bipolar disorder, I just have a low character”, or “blame everything on bipolar disorder”.
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As I sat in my car, eating my Quarter Pounder With Cheese, considering the either-or questions about my diagnosis, I felt an uncomfortable tension in my torso. It almost felt like fear, and I could practically hear my own subconscious warning me that I was coming dangerously close to a conclusion about myself that could lead to stopping my medication again. I remembered the horrible withdrawal symptoms I’ve experienced in the past when I’ve suddenly decided that I just have a low character. I remembered the frustration of malfunctioning reason and judgement, the utter inability to focus on anything for more than an hour or two at a time – and the reverse, the hyper-focus on a wonderful intention, and getting pretty far down the road toward accomplishing some goal, and then suddenly becoming totally unable to complete the project.

If I had done nothing more than listen to that internal voice I wouldn’t have given the questions in my mind much more thought, but I ignored it while I ate my lunch. I thought about that first Paxil pill I took back in 1996 and wondered, regretfully, if all of the problems I went through were 100% caused by the medications I used, off and on, throughout all the worst years. I wondered if I took that medication, went on and off the medication, because I needed an excuse for the destructive, self-indulgent decisions I was making right and left. I even wondered if the mental health professionals I consulted during those years led me in to a lake of fire. I wondered if the medications I’ve been taking all these years have permanently damaged my brain, rendering me unable to function without them.

In other words, I spent a lot of time thinking about personal responsibility, yesterday. The very phrase was like a light from a distant source, shining down on the ground somewhere in front of me. A light I wanted to follow.

And so I took a deep breath, and here’s what I decided to consider as I move through the next few days:

  1. I think a lot better, and feel a lot better, on the medications I’m taking right now
  2. There’s no need for me to think about my medications, right now
  3. Ruminating about a period in my life that was awful won’t help me move forward
  4. I don’t practice much personal responsibility in my life – but that doesn’t really have anything to do with my character

Funny, but once I’d reached this point in my thinking I felt better, not worse. Taking as much personal responsibility as I can for my decisions big and small is something that is within my control every moment of every day. Personal responsibility is the opposite of helpless, and taking personal responsibility for the choices I make about my life feels good.

Taking charge of the choices I make about my ability to live a full and happy life despite having bipolar disorder means, to me, right now, doing exactly what I’m doing with this blog. It means stepping out of the shadows of my past, my fears, and my assumptions. It means not accepting the isolation I’ve surrounded myself with for so long, or my unwillingness to expose myself to rejection or failure because I’m different.

It means thinking well of myself.

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Exploring Doubt

When I was 30 I started seeing a psychoanalyst. I don’t remember her name, which isn’t surprising, given the number of mental health professionals I saw in succeeding years. I’m talking about it here because it was the beginning of a long, horrible road.

30-allI made the appointment because I was drowning in stress. The stress wasn’t surprising, since I was the sole technical support person for two busy Price Waterhouse partnerships, and was involved in a horridly obsessive romantic relationship, and my family was in the middle of a red-alert-crisis I didn’t care to become involved in. I didn’t know what a psychoanalyst was supposed to do to help me feel better, but I thought it was worth a shot.

The doctor was cold as ice. When we met, I asked her if she was married, had children, etc. — the normal chit-chatty “get to know you” type stuff, and she responded by telling me it was inappropriate to ask her that question. Everything about her was impressive, from her fancy leather couch to her wardrobe. If I was a bit nonplused by her demeanor I was also reassured that I had found an expert. I just wasn’t sure what she was an expert at.

Psychoanalysis was hard, though I don’t remember what we talked about. This was not the type of therapy sessions I had later, with other therapists. I believed in the process we were going through – weren’t people always seeing analysts on TV and in the movies? Wasn’t an analyst one of the hallmarks of a successful career woman? – but the truth was it wasn’t making me feel better or worse. It was just a weekly appointment with someone.

My brother had recently been diagnosed with bipolar disorder, and my parents were getting up to speed on what that meant. I refused to participate in the learning process because I was so angry with my brother, and that was disappointing to my family. I found the suggestion to be extremely insulting, at the time, and I refused to see a psychiatrist for an assessment. So it was somewhat surprising when I decided to see a psychiatrist for my own reasons.

I made an appointment with a shrink because psychoanalysis wasn’t making me feel better, and I thought an antidepressant would. After all, wasn’t an antidepressant one of the hallmarks of a successful career woman? My psychoanalyst was dubious about my decision to see a psychiatrist, possibly because I wasn’t depressed, and asked me to at least wait, and voiced her deep concern about taking an antidepressant, but I ignored her stern warnings. So I saw a young man, fresh out of medical school, and simply asked for an antidepressant. He put me on Paxil, and threw in a prescription for Klonopin as well. I didn’t get the Klonopin filled because I was leery of benzodiazepines.

The Paxil seemed to work well for a couple of weeks. I felt happy all the time; in fact, the energy expended by my stress before I took my first Paxil seemed to reroute to happiness. But then… the change. The insomnia. The first mixed episode. The nervous breakdown during a business trip. I didn’t understand what was wrong with me, and I wanted the reassurance of a diagnosis, so I saw my psychiatrist again and asked him what I had. Was it depression? Could I be bipolar? The psychiatrist looked through his notes the way a college student thumbs through a notebook during a pop-quiz, and came back with this: “Well, it says here you have an eating disorder.”

And I said, “What?” Because we’d never discussed my eating habits, and at 5’1″ and 115 pounds I certainly didn’t look like someone with an eating disorder. I was all about caesar salads and pasta and queso. He shrugged and told me a diagnosis really didn’t matter, and I let it go.

I started seeing a different therapist that summer. She didn’t think anything was wrong with me, and blamed a stressful family situation and less than stellar coping skills for my irritability. And then… on and off the Paxil. Take it until I couldn’t stand the insomnia any more than then simply quit taking it. Lay off the Paxil until I started sobbing uncontrollably every night and go back on the Paxil. Stop taking the Paxil because my therapist didn’t think I needed it. Lay off the Paxil until I got a wild hair and decided to start taking it again. Stop taking the Paxil because I didn’t want my boyfriend to think there was anything wrong with me. And on, and off, and on, and off.

I became suicidal the following fall. I couldn’t stop thinking about it. Or about my (temporarily ex) boyfriend. Or about any other number of things that were rushing through my head so quickly I couldn’t catch any one of them for any prolonged period of time. I told my therapist about it, and she was shocked and concerned and immediately called my psychiatrist. I saw my psychiatrist who seemed angry and had me go home and get my medication and come back to his office and give it all to him because, in his words, I obviously couldn’t be trusted with it. So, off the Paxil again.

And then the night I couldn’t stop sobbing. Fine one minute, the next sobbing so uncontrollably that I had to leave my cousin’s graduation ceremony where I unceremoniously plopped on the grass outside the auditorium and sobbed. My mother taking me back to my apartment, calling my psychiatrist, going to the pharmacy to pick up the long-unused Klonopin prescription, and the weird feeling after I took the Klonopin, the magical cessation of sobbing, the odd feeling of feeling nothing. My mother leaving angry because her son and her husband (another story) and her daughter were all in crisis and she was trapped, taking care of all of us at once.

And then my psychiatrist told me he had decided to leave the profession. And I told him I thought that was probably a very good idea.

And then the impulsivity. The deciding, one night around 8pm, that I would move to Denver the next day, and the stopping by the (no longer ex) boyfriends house to tell him it had been nice knowing him. The changing my mind the next morning and deciding to remodel my rented apartment, instead. The taking a contract position with IBM in Boulder, Colorado and my mother coming over the night before I was supposed to move because I hadn’t packed any of my belongings to take with me. The running away from Boulder and back to Austin after one day on the job, leaving behind a fully-furnished, $1200 a month apartment I had just rented. The writing hot checks all over Austin before borrowing $50 from an old friend and driving back to Denver, where I accepted a different job with a hefty signing bonus. The getting pregnant. The leaving the new job with no notice, one day, and packing everything up and putting it in storage in the space of 4 hours, and the running back to my parent’s house near Houston. The miscarriage. The pawning my TV for gas money to get to an interview. The commuting between Houston and Austin every day for a month while I saved the money to move back in to my own place. The psuedo-suicide-attempt. The two hospitalizations. The affair with my psychiatrist. The year of booze and Ambien. The shaving my head. The sudden switch to every psychopharmaceutical drug on the market. The temporary psychosis. The new psychiatrist telling me I couldn’t possibly be experiencing psychosis. And then, that he, too, had decided to leave the profession. The being evaluated at the Baylor Mood Disorder clinic and being told I was not bipolar. The finding a different a new psychiatrist and settling down in to Neurontin and Seroquel. The new doctor telling me I probably didn’t need to be on medication. My terrified refusal to stop taking it. The realizing the music I’d been hearing in the background all the time might not be real.

And then the road to today.IMG_0584

In thinking about the period in my life that I’ve just mentioned here I suspect it isn’t surprising to anybody that I am relatively distrustful of mental health professionals — or, at least, that I am aware that it’s important to pay attention when entrusting my mental health to one of them. It also isn’t surprising that I often feel guilty about being on medication at all.

And how, you may wonder, did I come to the conclusion that I am, indeed, bipolar? And old psychiatrist that I saw a few years ago. And a discussion I had with my current psychiatrist after I quit drinking, last year. The one where I told her I am certain I must be bipolar. There’s more to it than that, of course. As she said, the diagnosis isn’t as important as the symptoms. In my case, the symptoms are what we’re treating, and the symptoms sound very much like bipolar disorder. What has never been clear, in my case, is what my diagnosis might be if I were on no medications at all. After all, it’s been 12 years since I was completely drug free, and I wasn’t seeing anyone before that. 12 years of weight gain, high cholesterol, horrid mood swings, weird behavior (not that I wasn’t weird before).

Are the medications worth it? Am taking them to avoid dealing with psychological issues I’d rather not deal with? Much to think about.

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A tribute to dial-up AOL Instant Messenger, my Mom – and to the year 2000: The year I shaved my head, finally lost my mind, and got my dream job (all at the same time).



MOMgood grief!~ I couldn't get on!WACO Hi, Mom!
MOMhowdy! :)WACOI am bald!
MOMI have a big bandaid on my left stickit toem finger so watch out. Why are you bald?!!WACO
MOMYou did it again?WACODid what?????
MOMCut your hair short?
MOMVery short?WACO Hold on, let me splain...
MOMk
MOMso
MOM?WACOI cleaned house all day Sunday & was VERY tired by 8:30. So I decided to go to bed early ...
MOMyes...WACOI took 2 Ambien and waited for them to take affect...
MOM yes, and they didn't, right? you got bored & cut your hair?WACO Two hours later, I was wide awake and beginning to panic... too tired to finish my work that was due the next day and yet unable to sleep...
WACOSo I made myself a margarita...
MOMArg
MOMagin
MOMarghhhhWACOI woke up the next morning bald
MOM?WACO No, it's better. I mean bald, literally. Bald. BALD.
MOMWhat happened?WACOI have a hazy memory of happily chopping off all of my hair. I think it had something to do with cleaning house. Cleaning up my head. Something like that.
WACOI joyfully shaved my head and then went to bed.
MOMMy gosh! Have you called a doctor? Did you get a wig...
MOMDammitWACO I woke up at 4:30 the next morning. I knew it wasn't a dream when I had to peel my head, which was neatly velcro'd to the pillow, off the bed.
WACOI saw the doctor today.
MOMAnd whay was determined?WACO Of course, the first thing I did was to throw away all of the Ambien and liquor.
MOMGood. Then?WACOThe doctor told me that it's one thing to have a drink before you take the Ambien... quiet another to take a drink afterwards...
MOMSo what's next?WACO She told me I'm fine. I'm not depressed - wasn't depressed at the time. Doesn't have anything to do with depression. As I mentioned, it was a happy, fun, joyful experience until I woke up.
MOMNot at all manic or in any kind of altered reality or anything? HA!WACO I showered, put on my makeup, wrapped a red bandana around my head, stuck a cute straw hat on top of that and went to bed
WACO Ooops - make that, went to work...
MOMMy gosh. Do you still have a job?WACO Sure I still have a job. Everybody got a good laugh out of it, not the least of whom was me (actually, I didn't laugh until today).
MOM Well, get it fixed, darn it. Well, maybe I'll laugh tomorrow. That scares the pewaddle out of me. WACO First of all, the wig market seems to cater to the black population.
WACOBlack people at wig stores are very nice.
MOMDid you find anything decent?WACO Well, I found one that looks just like my natural hair when it's short.
WACO Unfotunately, it is not made out of real hair.
MOMDid you get it?WACO Yes, I got it.
WACOBut people stare a whole lot more when I'm wearing it than when I'm just wearing a bandana.
MOM Well, maybe you won't shave it off...it won't grow back, you know. :)WACOHahahaha.
MOM Well, check with some beauty shops. I now they still make real wigs for real people. Check with some cancer figgit places.WACO I wore it to work and Jennifer, my co-worker, said right off, "I think you should go someplace that has a better selection."
MOMYup.WACO Also, I didn't realize that my left ear was half-way tucked under the wig.
WACOThat might be one reason people stared when I wore it.
WACO Lots of funny, funny stories out of this little incident, let me tell you.
MOMDo you recall anything besides joy when dyou were doing the deed? LIke...WHY?WACO Anything besides joy? No. I was bored. I thought there was a little white dog with brown and black spots sitting next to me (kind of like a kid playing make-believe), and I was talking to it the whole time.
MOM Please, please PLEASE wear eye makeup. :)WACOLots and lots of eye makeup!!!!!!!!!
MOMI think JL and Amy are planning on living together.
MOMShe's looking for work down here.
MOMShe is bipolar and takes neurontin and welbutrin. sigh.
MOM She has a great personality, though, and is a lot of fun.
MOMAdn she has hair.WACOHairly a good reason for living with someone.
MOMI'm thinking.
MOMShe was hair Sunday but gone Monday. Won't be hair again for a couple of weeks.WACO I think I'm probably safe now. After all, if I had a wild hair, it's certainly gone now!
MOM Cep fer the hair on yer chinny, chin, chin!WACOI threw it all away.
WACOLike throwing a dead body in to the dumpster to hide the evidence.
MOMI wonder how long it will take to grow back.WACOI don't know. But at least it solves the question of what to do about my hair color!
WACO I think I'll probably end up enjoying the experience, over all.
WACO Not something I would EVER repeat, though.
WACOA shaved head is an ugly head.
WACO And my head is not round. It's pointy in the back and I have a big face. Cute ears, though. Kind of makes me look like an alien. A nice, cute, friendly alient
WACOI have an interview with 6 six people at Tivoli Friday afternoon. I just found out today.
WACOIt's a sitcom type of a situation.
MOMSitcom as in they applaud when you say the right thing? Over the phone?WACO Sitcom as in I finally get an interview with Tivoli, but only after I've shaved my head!
WACOIn person interview.
WACONo applause.
MOM Waco, get a weal wig. A good one.WACOI can't afford a weal wig. Wouldn't know where to get one. And I can't tell you the kind of stares I got when I was wearing this one. People KNOW.
MOMThey don't know if you're wearing the right kind. Weally.WACOThe one I got was $89!!!!!!!
MOMYou'll look weird without a weal wig Waco. I'll call around here and see what I can find out.WACOI refuse to invest hundreds of dollars in this mistake. Especially since it's grow out so soon.
WACO Keep in mind, Mom, that Austin is full of wierd people, and many of them work for Tivoli.
MOM:{WACO But I don't have a left curly bracket. As a matter of fact, I don't have anything curly at all!
MOMWhat would you be doing for Tivoli?
MOMweal work wifout a weal wig Waco?WACOI'd be doing Notes programming for them.
MOMWeal work. Weally!WACOI am keeping my head covered at all times. Even in the car.
MOMSoon you will be able to brush your hair into a large curl on top of your head like all the other little babes.
MOM Good for you. Now, if you get a veil, and wear lots of eye makeup, you can be mysterious! And HOT.WACO Part of the beauty of the bald head is the pale, blueish-white background of scalp against dark stubble. I wouldn't want to ruin the affect
WACOI'll tell you what's hot. A WIG is hot. And what REALLY bad is when you've just shaved your head and you're in a wig store and you put on a wig and the sales lady sprays your head with wig conditioner. STING!!!!!!!
MOMYeah! I can't believe you did this.WACO I look constantly surprised, sort of shocked. My eyes look huge.
WACOI'm sure everyone who sees me understands that I can't believe I did this either.
WACO The 23 year old who sits across from me at work really didn't get why I thought it was a big deal. "Why are you wearing a bandana?" he asked, "I don't get it." He's the guy who's part owner of a dance club down on sixth street.
WACO Jennifer said, "You've got to get some other bandanas. You can't just wear the same one every day!"
MOMHow long do you think it will be before you can go sans scarf?WACOI think probably just a few more days before I lose the scarf.
WACOWhen my scalp isn't showing anymore.
MOM Well, you can but a good, holy wig for the cost of a few scarves.
MOMGet one that's red or something.WACOFUN.
MOMOr platinumWACOI could strap a pony-tail to the back of my head (tie it under my chin).
MOMArg.
MOMMy baby.WACO The black people's wig store had really neat wigs. Mom, they were so nice! It reminded me of when I used to go to the beauty shop with Granny or Neta.
WACO Jennifer said that black women wear a lot of wigs, and I think she's right!
MOMTry a white people's wig place. ...
MOM I know I never mentioned it to you, but you are basically caucasian.
MOMA little redskin thrown in...WACO
MOM Although your dad is Black Irish, whatever that is.WACOMe? Caucasian? Is that why my scalp is blue?
MOMOr so he says.
MOM Your scalp is blue because your brain floated away and left a shadow in its place, dear. WACOI think black women are much more church-oriented than white women.
MOM And where is this staement goin? Church wigs, or what?WACOI'm ignoring the brain remark.
WACO Oh - the church thing. Well, I say that because ...
MOMYes
MOM?
MOMyes?WACO When I was at the wig store, the ladies often said things like, "well, that's all in the Lord's hands" or, well, stuff like that a lot when they were talking to each other. They talked about God as if he were a very present parent that was someplace in the back of the store, managing the accounts. Like, when they weren't certain about something, the guy in the back would figure it out.
WACOAnd they mixed it with stuff like, "So, who you sleep with? Just kidden'!"
WACOThey lady who helped me called me 'sister'. That was so neat.
MOM Well, I hope they are right. Somebody needs to be thinking things out.....she called YOU sister? Neato.WACOYep!
WACO When I walked in the store she said, "Can I help you?" and I said, "Yes mam, I'd like to look at a wig." And she said, "Well, imagine that. A wig. I can't believe you'd walk in this door lookin' for a wig!"
MOM Did you talk your regular talk, then? :)WACO Yes, I talked my regular middle-class white girl talk. I don't know any other kind of talk.
MOM She probably was thinking, "I can't believe you'd walk in this door, period! "WACOI don't know. But all the ladies who were there trying on wigs were very sweet and very helpful.
WACOMost of them were elderly women.
MOMThen she saw what was supposed to be your shiny white pate and noted that it was blue instead.WACO She asked me if I wanted to try it on in the bathroom. I just about died when she said, "Here, try this on," and held it out to me like it was a hat or something.
WACO It's growing darker every minute, though. I guess it probably grows sort of like a beard.
MOM Probably. And you have very thick hair. Remember that the flattops are popular now, and those stick in every direction dos too.WACO
MOMIt won't be too bad.
MOMI hope.WACO You know, I could have learned a lot of life lessons a lot sooner if every time I insisted on continuing to do something stupid I woke up the next morning with a bald head!
WACOThinking about dropping out of high school or college? Here ya go... Rather not pay your bills? ZAP.
MOM Well, honey, you'd probably get used to that,too.WACOI don't think so.

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I spent some time on research over the weekend (and on finding a way to display that research in this blog). What little information I focused on was astounding and is still on my mind. The possible discovery of a gene that would point to an entire subtype of bipolar disorder that might be treated with anti-inflammatory treatment. A radically decreased estimated lifespan. Double and even triple risk of heart disease, kidney failure, asthma (all of which can also be impacted by faulty immune system responses, including inflammation). Even evidence that poor test results for blood lipids could be a hallmark of bipolar disorder.

Personally, I have both asthma and horrid cholesterol levels, and heart disease and immune disorders run in my family.

I’m no scientist, so I’m trying not to come to my own conclusions about what I’ve read but a few questions do keep spinning through my mind:

  • What would it take for physicians of all kinds to collaborate and plan care for their patients? And I’m not just talking about prescriptions, here. I’m talking about agreeing on risk factors to monitor, and non-pharmacological therapies, and overall support and monitoring
  • Why does the psychiatric community continue to focus on what appears to be outdated information: that is, that mental illness is all in our heads, and that medication designed specifically to sedate, to alter mood and perception, are our only options for treatment?
  • Why do mental hospitals continue to focus on warehousing, group therapy, and “one size fits all” psychopharmacology for their patients?
  • Why does bipolar disorder not immediately set off warning bells — why do our doctors not immediately test for those diseases and illnesses research so clearly shows are associated with it?

These questions, unfortunately, play in to my general distrust of the medical community – something I am working on overcoming. They also, however, lead to my next topic; one that Barb touched on when she commented on my last post: my own responsibility to commonsense self-care. Do I exercise? Not right now. Do I make an effort to eat a healthy diet? Rarely. Do I try do maintain a healthy sleep schedule? Never.

It would be easy to blame science for my health issues, and it would be easy to blame bipolar disorder for my poor self care. These are excuses I have to admit that I use every day. I don’t quite smoking because I’m afraid of a manic episode (something that’s happened in the past). I eat cinnamon rolls all day because I need the pleasure they give me to get through my work day. Ditto fountain Diet Cokes. I don’t cook healthy meals because I’m too tired. I don’t clean house because I have important creative business to attend to, like this blog.

Blame and excuses, like shame and guilt, have little place in a healthy life. When I was in therapy we focused a lot on these cornerstones of immobility, and I actually made some progress away from them. Now, having been off the therapy wagon for a number of years, I find that I’ve built on those cornerstones and now have a pretty solid foundation of unhealthy habits on which to live my life.

I hope we continue to make strides in the case for the inextricable links between physical and mental illness, and I hope our doctors catch up soon. It is important, though, not to get sidetracked by the questions they present.

Which is why, this week, I have the following goals:

  1. Cut out the cinnamon rolls
  2. Go to bed an hour earlier every night
  3. Begin the search for a therapist
  4. Continue my research, and blog every day
  5. Read and comment on a different blog every day

Does anybody else struggle with a tangle of medical, mental, and self-care issues? I’d love to hear about it if you do.

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Episodes associated with mental illness are traumatic. It isn’t a topic that gets discussed, much, but I wonder if our current approach to treating mental illness – the medication, the therapy – lacks an important focus. I wonder if we should place an equal emphasis on rehabilitation, in much the same way we focus on rehabilitation for patients who have experienced head trauma.

I am too often a flower that refuses to bloom for fear of the sun, or for fear of a freeze. It doesn’t matter that’s it’s partly cloudy and warm outside; I remain resolutely closed. And why is that? When I was younger I tended to open with abandon. Every episode, when I was young, was going to be the last episode. It wasn’t until the episode that seemed it would never end that I lost my nerve.

It began the summer I turned 30. The Austin of that year was all thrumming heat, tropical flowers, vivid greens and blues and saturated, woody browns. Everything was the most everything anything had ever been in my life. The most beautiful. The most in control. The smartest. The fastest. The most successful. The richest. The busiest. The most in demand. Under the circumstances, I was convinced that this, finally, was what it meant to be a grownup; that everything that had come before had come because of a lack of skill.

It didn’t last, of course. The summer turned into a desperate fall, which led to rapid cycles of hard-edged mania and soggy depression, until all time turned into a mixed episode. I became a sobbing bag of fury, obsession, self-hatred, psychosis, impulsiveness, and suicidal ideation.

It lasted for 4 years.

I remember feeling so angry. I couldn’t seem to go all the way crazy, and I couldn’t seem to get better. My perceptions were skewed all over the place and so was my judgement, and that was overwhelmingly frustrating to me because it meant that nothing ever turned out the way I thought it would. I was hearing and seeing things all the time, things I could never find, and I didn’t know that they were hallucinations. Sounds of every kind were intensely irritating to me. I didn’t trust anyone. At all. I had lost any friends I might have made the summer I turned 30, and although I couldn’t stop thinking about killing myself I couldn’t seem to do that, either. And there was this intense agony in my body all the time, a kind of odd, terrible, horrible need to stretch out and run that stretching out and running did absolutely nothing to sooth. And I was paranoid — oh but I was paranoid. It wasn’t just that I believed everybody hated me. I believed everybody hated me for no other reason than that everybody was cruel and mean and awful and that they would hurt me if they could.

Interspersed throughout those 4 years of hell were hours, even days, when all of my symptoms were at bay. These respites were spent recovering in a kind of useless way because I knew the next onslaught would appear shortly. I was exhausted.

One night I walked outside and stood in the middle of my parent’s driveway. I was crying, and my fists were clenched tight, and I felt full of rage towards the idea that the rest of my life would be eaten by this affliction. “I will be better than this, I WILL BE BETTER THAN THIS” I said out loud (though softly). It was an incredibly histrionic moment for me, and I knew it was, which is why I had chosen to experience it in the middle of my parent’s driveway, sometime after midnight, with no one to judge me but me and what may or may not have been an imaginary angel hovering a few feet over my head, all bronze feathers and sympathy.

It wasn’t as if no one had ever prescribed medication for me before; I had simply never followed anyone’s instructions because I didn’t trust anybody. And yet my absolute determination to “BE BETTER THAN THIS” somehow gave me the idea that I didn’t have to trust somebody to try what they suggested. I didn’t have to trust a doctor to follow doctor’s orders, in other words. So I picked a doctor – somebody who at least looked like I thought a doctor was supposed to look – and for once I did as I was told. Because of the medication, I was able to build a bunker in my very own bed out of pillows, stuffed animals, and the complete works of JRR Tolkien and (eventually) spend entire weekends in my own apartment. One thing led to another, which led to another, and another, and eventually I found myself in what passed quite nicely as the place you actually do get to when you’re mentally ill and you’ve learned a few coping skills.

The problematic thing about what I think of as bipolar trauma is that it keeps recurring, though the period between episodes may change from hours to months, and the ferocity of the symptoms may vary unpredictably. I may not have visited with my big, bronze angel since then, but neither has that period turned out to be an anomaly. In fact, my life went out of control again quite slowly this last time, but no less emphatically.

By process of elimination, and by forcing myself to get back out into the world again, I have been forced to accept that there are some things I can no longer clearly differentiate between. I honestly don’t know the difference between, for instance, who means me harm and who is simply standing there, not giving me a second thought. I honestly don’t know how I am perceived by the world around me, and I’m not sure of my place in the world. I can pretend that I have my bearings for long periods of time, but I don’t have any idea if I am successful in that pretense. Therapy might give me some insight into my fears, but I am not aware of a therapy that might help me to train my brain to bypass the pathways damaged by my experiences.

I am forced to admit that I can’t simply choose to bloom again. When should I bend to the shade? When to turn to the sun? Without answers I’m afraid I will remain at the mercy of my own determination and the sympathies of angels, wherever they may be.

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